ERNIE OCTOBER 1996
Joan and Jen are in to visit me each day and stay as long as they are permitted. It is so embarrassing, they must enter through locked doors and be checked for sharp objects before seeing me.
Yesterday Joan was very worried that I had not showered and changed my clothes, so I got in the shower but could not remember the procedure. Jen stood guard watching for the nurse while Joan took a shower with me in my room. I don't want them to break the rules here. Joan and Jen don't seem to care what the nurses think.
ERNIE MARCH 1997
I am in my home. I resist my schedule and head for the only safe place these days, my bed. I cannot eat much of anything, nothing tastes good. I can't read or watch TV. Some of the medication makes my vision blurry and causes my hands to shake. Concentration is nowhere. It is evident that some of the side effects of the medication resemble symptoms of the illness. They say I should be feeling significantly better in future days.